Going on holiday

You need a break, your children need some fun but the idea of jumping on a plane or coach to Bogor or Barcelona is utterly daunting.

Pre-planning can make your trip, whether it’s for a day out or two weeks abroad, less stressful – we can’t promise stress free.


If your child has a genetic condition, chances are you are regular visitors to the hospital and you may see many different experts across a range of departments and end up having to repeat your child’s healthcare history each time. This is where the ‘patient passport’ can be invaluable.

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