Our genetic counsellor-led helpline service is for people with a genetic condition, their relatives, professionals and anyone who needs to know more about genetic conditions and how to cope with the difficulties they can present.

Our helpline is an expanding service and is the only free helpline in the UK for all genetic conditions. It is a confidential and non-judgemental space for you to find out the information you need and discuss your feelings, concerns and fears about a genetic condition.

The helpline is open Monday-Thursday from 9am until 5pm. You can leave a voicemail or send an email at any time and we will aim to respond within three working days.

Your enquiry will be treated in the strictest confidence. Please look at our Privacy Policy for more information.

How you can contact our helpline

Telephone answering service (UK): 0800 987 8985
Contact form:

When leaving us a voice message or sending an email please ensure you include your name, telephone number, name of the condition you are enquiring about and a brief outline of your main question or concern. This will enable our team to more effectively respond to your enquiry.

Please note our service cannot provide diagnosis, genetic testing or general psychological counselling.

You can read our Confidentiality Policy or the Compliments, Complaints and Feedback Policy by clicking the links