Last updated on October 28th, 2022 at 12:10 pm

Nominations for all categories now closed!

The Gene People Leadership Symposium 2022 is delighted to host the very first Gene People Awards 2022 – an opportunity to highlight the incredible efforts of individuals and organisations in improving the lives of people affected by a genetic condition.

The Gene People Awards celebrates the huge positive impact that the genetic condition community has on the 2.4 million people in the UK living with a genetic condition.

This year’s awards focuses on all aspects of the genetic condition community during 2020 and 2021. Nominations for all categories are now open. If you know of an outstanding individual, organisation or campaign that deserves recognition, complete the nomination form to celebrate excellence in genetic conditions.

Gene People Awards 2022 categories

Best Campaign. We are looking for brilliant awareness or advocacy campaigns that achieved or exceeded their objectives. The campaign can be on any media channel (or a mixture) and could be aligned with national or international campaigns, such as Rare Disease Day or The Big Give Christmas Challenge. This is open to condition-specific support groups and charities only. Nominations can be made by anyone for this category.

Best Volunteer. We are looking for volunteers who made a major positive difference to a group or charity. They may have volunteered online, in person or a combination. However they helped, we want to hear about them and the impact they had. Nominations would be particularly welcome from those living with or caring for those with a genetic condition.

Best Research Partnership (kindly sponsored by PTC Therapeutics). We are looking for a research partnership that is an excellent example of best practice. The partnership will be between a condition-specific support group or charity and another agency, such as an academic or clinical institution, or a healthcare company. It is essential to demonstrate: The involvement of people living with a condition, how people living with a condition engaged with planning and delivering the research, high-quality communication with people affected by the condition, and how insights by people affected by the condition were sought (and how it shaped the partnership). Nominations will be for the condition-specific support group or charity and the research body they partnered with – either can make the nomination and the award will be jointly awarded.

Lifetime Achievement. We are looking for an exceptional person to receive this award. We are seeking unsung heroes who may be founders, trustees, and condition-specific support group and charity leaders who have dedicated themselves to those with rare genetic conditions or those who have worked tirelessly behind the scenes over many years whose efforts are so often overlooked but who are deserving of recognition. The nominee must be connected to a condition-specific support group or charity. Nominations can be made by anyone.

Gene People Awards 2022 sponsors

PTC Therapeutics are committed to a single purpose: Extending life’s moments for patients with rare diseases and their loved ones. Their mission is to provide access to best-in-class treatments for rare disease patients who have little to no treatment options.

PTC is kindly sponsoring the Best Research Partnership category at this year’s Gene People Awards.

Terms and conditions

  1. The Gene People Awards are eligible for UK-based organisations, and individuals affiliated to UK organisations, only
  2. The closing date for nominations is 12:00 (midday) 28 October 2022
  3. Late or incomplete entries will not be considered
  4. Participants (winners and shortlisted nominees) will be expected to participate in promotions relating to their award in partnership with Gene People.
  5. The winner will receive a certificate for their category and be featured on Gene People’s website and social media channels. Shortlisted nominees will be named on Gene People’s website
  6. The judging panel’s decision is final, and no correspondence will be entered into