Contacting other families

We work in close partnership with condition-specific smaller charities and support groups. Search our directory for one that supports the condition affecting your family http://www.genepeople.org.uk/charitiesandpatientgroups/charitiesandpatientgroupnetwork

LINKS TO HELPFUL WEBSITES AND SOCIAL:

Contact: https://contact.org.uk/

Genetic Alliance: www.geneticalliance.org.uk

Mencap: www.mencap.org.uk

Mumsnet: www.mumsnet.com/special-needs

Netmums: https://www.netmums.com/support/special-needs-support

SIBS: www.sibs.org.uk

Together For Short Lives https://www.togetherforshortlives.org.uk/

Scope: https://www.scope.org.uk/

Unique: https://www.rarechromo.org/

Blogs:

www.downssideup.com – Natty has Down’s syndrome and is a clothing model

https://planetelliott.wordpress.com/ – Elliott has a rare chromosomal condition

Special Books By Special Kids – https://www.youtube.com/channel/UC4E98HDsPXrf5kTKIgrSmtQ

specialneedsjungle.com – information about government policy and support for parents with disabled children.

Please contact us if you have seen a useful website or you write a blog about genetic condition or if you have seen one you like. We’d love to share it with others.